Interstitial cystitis

What is interstitial cystitis?

Interstitial cystitis, also known as painful bladder syndrome, is a non-infectious condition with recurring discomfort or pain in the urinary bladder and the surrounding pelvic region without an identifiable disease.

How do members experience interstitial cystitis?

Top 5 symptoms reported by people with interstitial cystitis*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Are you experiencing one or more of these symptoms? Check your symptoms and clarify your options for care using

Top treatments taken by people for interstitial cystitis*

*Data from patients with interstitial cystitis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with interstitial cystitis*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(Vistaril)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
interstitial cystitis (1)

*Data from patients with interstitial cystitis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has interstitial cystitis on PatientsLikeMe?

Age

Age Proportion # of patients
<20 2
20s 64
30s 198
40s 379
50s 463
60s 360
70+ 180

Distribution of sex

Sex

Sex Proportion # of patients
Male 75
Female 1,553
Learn more about our community’s experience with interstitial cystitis.

Talk to people with interstitial cystitis

1,737

1K+

members say they have this condition

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Immune, Inflammatory and Infections,Chronic Pain,Kidneys and Urinary

Learn from others like you living with interstitial cystitis.
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