Consumer Health Data Privacy Policy

Last updated on June 06, 2025

This Consumer Health Data Privacy Policy supplements the PatientsLikeMe Privacy Policy, available here: https://www.patientslikeme.com/about/privacy. This Consumer Health Data Privacy Policy applies to personal data defined as "consumer health data" subject to the Washington My Health My Data Act and the Nevada Health Privacy Act and similar U.S. laws governing consumer health data.

What is Consumer Health Data?

"Consumer Health Data" is personal information that is linked or reasonably linkable to a consumer and that identifies the consumer's past, present, or future physical or mental health status.

Our Collection of Consumer Health Data

To provide the products, services or features offered by PatientsLikeMe ("PLM" or "The Company"), we collect and process information about you, including information that could be considered Consumer Health Data. The information we collect depends on how you interact with us and use our Offerings, as described further in the "How Data is Used and Shared" section of our Privacy Policy.

Depending on how you interact with PatientsLikeMe and its Services, we may collect the following categories of Consumer Health Data:

  • Any personal information you choose to share with other members on this social network that identifies your past, present, or future physical or mental health status.
  • Information about your individual health conditions, treatment, diseases or diagnosis.
  • Information about your social, psychological, behavioral, and medical interventions.
  • Information about health-related surgeries or procedures.
  • Information about use or satisfaction with a prescribed medication.
  • Bodily functions, vital signs, symptoms, or measurements relating to a health status.
  • Information about diagnoses or diagnostic testing, treatment, or medication.
  • Gender-affirming care information.
  • Reproductive or sexual health information.
  • Data that identifies you seeking health care services.
  • Other information that is derived or extrapolated from non-health information that we process to associate or identify a consumer with the data described above.

Sources of Consumer Health Data

Depending on how you interact with PatientsLikeMe and its Services, we may collect Consumer Health Data about you directly from you (which may include your interactions with our website and the Company Services), your device(s), and partners, vendors and third parties, as described further in our Privacy Policy.

Why We Collect and Use Consumer Health Data

We collect and use Consumer Health Data as reasonably necessary to provide you with the Company Services you have requested. This may include:

  • Providing, personalizing and improving PatientsLikeMe's community platform.
  • Providing measurement, analytics and other business services.
  • Promoting safety, integrity and security.
  • Communicating with you.
  • Other essential business operations that support our ability to provide you with our community platform, such as understanding (in aggregate) usage of the PatientsLikeMe's services and conducting research and development.
  • Complying with our legal obligations.

We may also collect and use Consumer Health Data for other purposes with your consent or authorization. For additional information on our use of information, please see the "How Data is Used and Shared" section of our Privacy Policy.

Disclosure of Consumer Health Data

We may disclose each of the categories of Consumer Health Data described above as reasonably necessary to provide you with the Company Services you have requested (as described above), or for other purposes with your consent or authorization.

We share Consumer Health Data with the following categories of third parties:

  • Other registered members on this patient social network.
  • People and accounts you share and communicate with.
  • People and accounts with which others share or reshare content about you.
  • Apps, websites, and third-party integrations on or using the Company Services.
  • New owners in the event of a change of ownership or control of all or part of the Company or the Company Services.
  • Partners, including partners offering goods and services through the Company.
  • Vendors, including measurement and marketing vendors.
  • Service providers.
  • Third parties, including external researchers and academics.
  • Law enforcement or other third parties in connection with legal requests, to comply with applicable law or to prevent harm.

We may also share Consumer Health Data with additional categories of third parties with your consent or authorization. For additional information regarding our sharing of information, including Consumer Health Data, please see the "How Data is Used and Shared" section of our Privacy Policy.

How to Exercise your Rights

Depending on where you live and subject to certain exceptions, you may have certain rights in relation to your Consumer Health Data, including the right to:

  • Request that we confirm whether we are collecting or disclosing your Consumer Health Data (and with whom), and to access such Consumer Health Data.
  • Request the deletion of your Consumer Health Data.
  • Request to withdraw your consent for the collection or disclosure of your Consumer Health Data.
  • Review and request changes to your Consumer Health Data.

To submit a request to exercise your rights, and as applicable, to appeal a consumer rights action, please contact us at compliance@patientslikeme.com.

Material Changes to this Consumer Health Data Privacy Policy

We'll notify you before we make material changes to this Consumer Health Data Privacy Policy. You'll have the opportunity to review the revised Consumer Health Data Privacy Policy before you choose to continue using the Company Services.

Contact for More Information

If you have additional questions about this Consumer Health Data Privacy Policy, please contact us by e-mail at compliance@patientslikeme.com.